About Us

The Spina Bifida Foundation of Victoria was established in the mid-1990s and provides its members and the community with a range of resources in living with, managing and preventing spina bifida. 

Programs 

  • Various – for members with spina bifida to improve fitness, mobility and independence
  • Continence management – information about independantly managing contience
  • Social club – events and social outings for members, organised by the members
  • Spina Bifida Awareness Week – annual awareness week held in the first week of September
  • Night of Celebration – annual celebration for members
  • Volunteer program – aimed at members to further develop their abilities and skills
  • Malcolm B. Menelaus Award – presented in honour of Malcolm B. Menelaus
  • Camps – annual family summer camps and adult & ski camps

Resources

  • Fact sheets – informative and educational material about spina bifida
  • Library – books about spina bifida and continence management
  • Community education and awareness – varying degrees of spina bifida and it's prevention
  • Folate information – use of folate in preventing neural tube defects such as spina bifida in early pregnancy
  • mc² – online discussion board/community 
  • Facebook – social networking page
  • Youtube – Various videos published by/for SBFV

 

 A Family Experience of
Spina Bifida

Produced by - Spina Bifida Foundation of Victoria

 

Malcolm B. Menelaus
(1930 - 2000)

Our Co-founder

Malcolm Menelaus was involved with orthopaedic management of children with spina bifida for more than 30 years.

He understood the need to ensure proper management and coordinated support for children with spina bifida and their families. By pooling the experiences of the spina bifida clinic at the Royal Children's Hospital and other international centres, he believed a clearer picture of the best treatment of this complex problem would emerge.

The Spina Bifida Foundation of Victoria was founded as a network for families and a contact point for information.

Geoffrey Rush

Patron

Geoffrey Rush has been involved in stage and film for more than 30 years. He has received many national and international awards including an Oscar and two Oscar nominations.

Geoffrey lives with his wife Jane Menelaus and two children. It is because of his admiration for Jane's father, co-founder of the Spina Bifida Foundation of Victoria, Malcolm Menelaus, that he is honoured to be patron.

Jane Hall

Ambassador

Jane Hall has appeared in many Australian films and television shows, most notably Channel 10's Neighbours where she currently stars as Rebecca Napier.

As a mother, Jane understands the importance of taking folate to prevent spina bifida, and is the Folate Ambassador for the Spina Bifida Foundation of Victoria.

The Spina Bifida Foundation of Victoria Inc does not receive any government funding and relies solely on the generosity of community members.

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