Helping people living with spina bifida

Spina Bifida Foundation Victoria (SBFV) provides members and the community with a wide range of resources for living with, managing, and preventing spina bifida. We were founded in the mid-1990s by a group of parents, physiotherapists and doctors to improve services and life chances for Victorians with spina bifida.

Pictured above are some of our members, read their stories here.

SBFV does not receive any government funding and relies solely on the generosity of community members.

SBFV congratulates all campaigners and Members of Parliament for working collaboratively to deliver DisabilityCare Australia (formerly National Disability Insurance Scheme) for people with disability, their families and carers.

What’s New

SBFV member Sean de Morton competed in the Ironman Australia Port Macquarie Triathlon on 5th May 2013 to raise funds for our 2014 Family Camp, finishing in the top 12% of competitors! Sean’s brother Justin has spina bifida. You can support Sean and SBFV here.

SBFV member Richard Colman represented Australia in the 2012 London Paralympics and won gold in the T53 800m and bronze in the 400m and 4x400m relay! Watch him winning gold here. Congratulations to Richard and his team mates for their awesome achievements!

Dr Stella Minahan spoke about spina bifida on ABC Radio’s Conversation Hour on 10th September. Stella has spina bifida, and is a former SBFV board member as well as a highly accomplished academic. A podcast of the show is available here.

SBFV patron and Australian of the Year Geoffrey Rush also joined Jon Faine on The Conversation Hour on 28th August – click here to hear Geoffrey speak about spina bifida on the show.